Grace Is Released!

Grace was released from hospital today. We were a bit nervous bringing her home, after all she’s been through, but the nurses were very reassuring and provided us with heaps of information on what signs to look for, who to call if we got worried, etc. It’s great to be home.

Published
Categorized as Family

Heaven’s Very Special Child

A meeting was held quite far from Earth. “It’s time for another birth.” Said the Angels to the Lord above, “This special child will need much love.” “Her progress may seem very slow, Accomplishments she may not show, And she’ll require extra care From the folks she will meet down there. “She may not run,… Continue reading Heaven’s Very Special Child

Grace Unplugged

The last of Grace’s attatchments came out today — her central line and pacing wires. She’s feeding well, and sleeping fairly soundly between feeds. Theresa made a fantastic Good Friday dinner of home-made ricotta ravioli tonight. We really are being spoilt rotten.

Published
Categorized as Family

Grace Out Of High-Dependence

Grace was moved out of the high-dependence room and into her own private room today. The feeding tube came out this morning, and she’s taking the bottle much better now. We’ve already noticed she doesn’t get as tired on the bottle as she used to before the operation, which is a great sign. Dr Nunn… Continue reading Grace Out Of High-Dependence

Published
Categorized as Family

Grace Out Of PICU

Grace was released from the PICU today! She is exactly 3 months old today. After such an operation, babies are normally kept in the PICU for 3 or 4 days. Grace was in for 7. At first it was because she went into pulmonary hypertension whenever the nurses handled her, and later her heart kept… Continue reading Grace Out Of PICU

Published
Categorized as Family

Grace’s Heart Surgery

Grace went into surgery this morning. The hospital gives waiting parents a pager, so that they can get out for a walk, do some shopping, or get some lunch, instead of sitting around in the waiting room until their child comes out of surgery. They page you about half an hour before the surgeon will… Continue reading Grace’s Heart Surgery

Published
Categorized as Family

Grace Enters Hospital

Grace went into hospital today in preparation for her big operation tomorrow. The Westmead Childrens’ Hospital is an incredible place. Everything is brightly-coloured and fun-looking, making it a happy place for kids to stay. They even have their own in-house TV and radio stations, which broadcast requests for kids, run competitions, and visit the wards.… Continue reading Grace Enters Hospital

Published
Categorized as Family

Nortel Raffle Fundraiser

Every Friday, we have a raffle at my work (Nortel Networks in Wollongong) to raise money for charities. Normally the proceeds go to Camp Quality, but one Friday a month the money goes to a different charity, to spread the benefit around. Because the NSW Down Syndrome Association has given Megan and I so much… Continue reading Nortel Raffle Fundraiser