Archive for April, 2002

Grace Rolled Over

April 29th, 2002

XBox Rocks

At Megan’s insistence, we bought an Xbox today. She’s been playing Munch’s Oddysee ever since.

April 26th, 2002

Finley William Jones Is Born

Our friends Will and Nicola gave birth to a healthy baby boy this morning. His name is Finley William Jones, born 7-4-2002 at 4:02am, 3.495kg (7lb 11oz), 50cm (20in) long. They are at the Royal Hospital for Women at Randwick, the same place Grace was born.

Congratulations, guys!

April 7th, 2002

Grace’s Heart Surgery Follow-Up

We took Grace up to Sydney today for some x-rays and a follow-up appointment with her heart surgeon, Dr Nunn. He was very pleased with her progress – there’s no sign of fluid around her heart or lungs, her liver is normal, and her heartbeat sounds fine. He also took out the stitch on her chest – all that’s left is a fine line, more like a scratch than an open-heart surgery scar!

April 5th, 2002

Down Syndrome Links

I’m trying to collect more sites about Down syndrome. If you have any suggestions, please email me.


Welcome to Holland – An article about what it feels like to find out your child has Down Syndrome, and a fresh way to look at the positive side of life.
Stories By Linda Moran – Essays by a freelance writer who has a son with Down syndrome.

Australian Sites

Down Syndrome NSW (DSANSW) – The support organisation we belong to.
Vinson Report of the Public Enquiry into Public Education – A report into inclusion in schools in NSW.
Disabilities and the Classroom – The transcript of a show that was screened on SBS in October 2002 about inclusion of kids with disabilities in mainstream schools.

Other Countries

The Down Syndrome Home Page (International)
Communicating Partners (US) – Dr James MacDonald, who works with children with Autism and Down syndrome
Down Syndrome Research Foundation and Resource Centre (US)
Down Syndrome: For New Parents
National Down Syndrome Education and Research Institute (US)
Down Syndrome: Health Issues (US) – Essays written by a pediatrician who has a son with Down syndrome, to help other parents.
Growth Charts (US) – Growth charts for children with Down syndrome.

April 2nd, 2002


April 2002
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